Caregiver burden and related factors in caregivers of patients with childhood-onset systemic lupus erythematosus

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dc.authoridKasapcopur, Ozgur/0000-0002-1125-7720
dc.authoridSahin, Sezgin/0000-0002-5365-3457
dc.authoridBarut, Kenan/0000-0001-8459-2872
dc.authoridBilgic, Ayhan/0000-0003-0703-2630;
dc.contributor.authorUzuner, Selcuk
dc.contributor.authorDurcan, Gizem
dc.contributor.authorSahin, Sezgin
dc.contributor.authorBahali, Kayhan
dc.contributor.authorBarut, Kenan
dc.contributor.authorKilicoglu, Ali Guven
dc.contributor.authorAdrovic, Amra
dc.date.accessioned2024-09-11T19:50:13Z
dc.date.available2024-09-11T19:50:13Z
dc.date.issued2021
dc.departmentİstanbul Gelişim Üniversitesien_US
dc.description.abstractObjective Having a child with a chronic illness is a source of stress for the whole family, especially the primary caregiver. The aim of this study was to evaluate the associations between caregiver burden and both the caregiver's and child's psychological symptoms in a cohort of children with systemic lupus erythematosus (SLE). Methods Thirty-four patients (aged 9-18 years) with childhood-onset SLE and their caregivers participated in this study. The control group was composed of healthy children and their caregivers. Questionnaires were used to evaluate caregiver burden and the psychological status of parents and children and adolescents with and without SLE. Results No significant difference was found between the study and control groups for caregiver burden, anxiety and depression in parents, and psychological status in children. Caregiver burden was positively correlated with parent's depression, anxiety, and behavioral and peer problems of the children, and it was negatively correlated with the children's prosocial behaviors. According to regression analyses, the parents' depression and children's peer relationship had a positive effect on caregiver burden scores. Conclusion Physicians should be aware of the presence of psychological symptoms in patients with childhood-onset SLE and their caregivers because it can affect caregiver burden and the caregiver's psychological state.en_US
dc.identifier.doi10.1007/s10067-021-05867-5
dc.identifier.endpage5032en_US
dc.identifier.issn0770-3198
dc.identifier.issn1434-9949
dc.identifier.issue12en_US
dc.identifier.pmid34341849en_US
dc.identifier.scopus2-s2.0-85111666501en_US
dc.identifier.startpage5025en_US
dc.identifier.urihttps://doi.org/10.1007/s10067-021-05867-5
dc.identifier.urihttps://hdl.handle.net/11363/7588
dc.identifier.volume40en_US
dc.identifier.wosWOS:000680349800001en_US
dc.identifier.wosqualityQ3en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.language.isoenen_US
dc.publisherSpringer London Ltden_US
dc.relation.ispartofClinical Rheumatologyen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.snmz20240903_Gen_US
dc.subjectCaregiver burdenen_US
dc.subjectChildrenen_US
dc.subjectDepressionen_US
dc.subjectLupusen_US
dc.subjectPsychopathologyen_US
dc.titleCaregiver burden and related factors in caregivers of patients with childhood-onset systemic lupus erythematosusen_US
dc.typeArticleen_US

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